LEGAL PROBLEMS OF GENETIC INFORMATION PROTECTION: A SUBJECTIVE APPROACH
https://doi.org/10.17803/2311-5998.2020.69.5.096-103
Abstract
Genetic information does not fully correspond to the concept of personal data. It can relate not only to a specific person, but also to his “biological family”. Their interests do not take into account the legislation on personal data.
The state genetic engineering policy should be based on the next principles: the freedom of scientific research, the protection of human dignity and the prohibition of discrimination. The state must limit the freedom to use genetic information, to fix in the law the conditions for its use, identify individuals who can process genetic information and organizational and legal genetic data security tools. In Russia, there is no comprehensive legal regulation of genetic information protection. It is necessary to adopt the law «On genetic information».
About the Author
S. G. Chubukova
Kutafin Moscow State Law University (MSAL)
Russian Federation
Russian Federation
Associate Professor of the Department of Information Law and Digital Technologies, Cand. Sci. (Law), Associate Professor.
125933, Moscow, ul. Sadovaya-Kudrinskaya, 9
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Review
For citations:
Chubukova S.G. LEGAL PROBLEMS OF GENETIC INFORMATION PROTECTION: A SUBJECTIVE APPROACH. Courier of Kutafin Moscow State Law University (MSAL)). 2020;(5):96-103. (In Russ.) https://doi.org/10.17803/2311-5998.2020.69.5.096-103
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